When the literature betrays the patient: Exploring systematic reviews through the lens of “race correction”

Li Ka Shing, Clinical and Population Research Rounds, 2024

Ending the Practice of “Race Correction” in Health Care speaker series as part of the Li Ka Shing, Clinical and Population Research Rounds, 2024

Presented by Dr. Patricia O’Campo, Executive Director of the Li Ka Shing Knowledge Institute at Unity Health Toronto, in partnership with the Canada-US Coalition to End Race Correction in Health Care and Knowledge Translation at the MAP Centre for Urban Health Solutions.

Date and Time (virtual event):  June 13, 2024 from 12 pm – 1:30 pm EST

Registration: https://tinyurl.com/cucerch7

About this talk: This talk will explore the question of – What does the reality of race correction mean for the integrity of systematic reviews that:

  1. Concern or include data based on a diagnostic tool that is race corrected;
  2. Do not explicitly take race correction into account.

Speakers will also discuss the implications for AI/machine learning, as systematic reviews and other peer-reviewed literature is often used for training data and modelling

What is “race correction”? Health care providers often use tests to assess a patient’s health. In many cases, health care providers calculate test results differently for Black patients than they do for everyone else. Overall, “race correction” means that Black people are diagnosed late, or never diagnosed at all, for serious conditions from heart, kidney and lung diseases to cognitive impairment. It also means that Black people are systematically excluded from timely access to life-saving treatments like organ transplants and other surgeries. “Race correction” has no scientific basis because “race” is not biological. It is a social construct that is applied differently in different times and in different places. In fact, scientists have shown us that people have more in common genetically across “racial”

Speaker bios:

LLana James

Co-chair of the Canada-US Coalition to End Race Correction in HealthCare

Dept of Biomedical and Molecular Sciences and School of Rehabilitation Therapy, Queen’s University

LLana James’ (she/her) research illuminates how technology can undermine or bolster human rights in the context of clinical care, rehabilitation science and public health. Her interdisciplinary and applied approach is designed to critically appraise current applications of technology while developing and implementing interventions that seed new, ethical futures. To accomplish this, LLana brings together academic and community scholars across disciplines and sectors to work at the intersections of medicine/clinical care, public health, data, AI, law, and race-ethnicity across multiple axes, e.g., gender, class, able-bodiedness. As a result of her ground-breaking work, she is the inaugural AI, Medicine and Data Justice Post-Doctoral Fellow at Queen’s University.

Amy Katz

Amy Katz (she/her) is a Senior Knowledge Translation Specialist at MAP, Unity Health Toronto and a PhD student in the Faculty of Information at the University of Toronto. Her current focus is on Knowledge Translation interventions with the potential to reduce institutional harms, including narrative harms.

Patricia O’Campo, PhD

Executive Director, Li Ka Shing Knowledge Institute

Tier 1 Canada Research Chair, Population Health Interventions

Professor, Dalla Lana School of Public Health, University of Toronto

Dr. O’Campo (she/her) is Canada Research Chair in Population Health Intervention Research and Professor at the Dalla Lana School of Public Health at the University of Toronto. Dr. O’Campo is an internationally renowned public health scholar who has an active research program that focuses on understanding the health impacts of complex urban social problems experienced by low-income populations. Through her scholarship over the past 25 years, dedicated partnerships with affected communities, and academic leadership for over fifteen years, she has generated strong evidence around interventions to improve the lives of those living with multiple health, social and economic challenges. She has been widely recognized for her contributions to population well-being through the receipt of early, mid- and late-career awards given by national and international organizations such as the US Centers for Disease Control, American Academy of Pediatrics, American Public Health Association, US Institute of Medicine and the Royal Society of Canada.

Nav Persaud, MD, MSc

Canada Research Chair in Health Justice

Associate Professor, Dept of Family and Community Medicine, University of Toronto

Physician, Dept of Family and Community Medicine, St. Michael’s Hospital

Scientist, MAP, Li Ka Shing Knowledge Institute

Dr. Nav Persaud (he/him) is the Canada Research Chair in Health Justice, Staff Physician in the Department of Family and Community Medicine at St. Michael’s Hospital in Unity Health Toronto, and Associate Professor in the Department of Family and Community Medicine at the University of Toronto. His research focuses on health equity or fairness, especially as it related to medicine access (cleanmeds.ca). He also compares national essential medicines lists in collaboration with the World Health Organization (essentialmeds.org).

Note: Sign language interpreters (ASL) will be signing during the event.

For any questions please contact LKSKIResearch@unityhealth.to

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